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Did anyone attend the support group with Dr Starr Thursday August 7th?
Neuroendocrine Tumors (NETs) | Last Active: Aug 15, 2025 | Replies (23)Comment receiving replies
@splendrous, Jennifer now facilitates the meetings. Please use this link to register https://mchealth.zoom.us/meeting/register/wcWv-MZNTAOg_NU5Xw8jLQ
I am working on getting access to the recording for registered members who were not able to access the meeting. I hope to have it by Monday and ask for your patience.
Feel free to reach out to me directly using this form: https://connect.mayoclinic.org/contact-a-community-moderator/
Replies to "@splendrous, Jennifer now facilitates the meetings. Please use this link to register https://mchealth.zoom.us/meeting/register/wcWv-MZNTAOg_NU5Xw8jLQ I am working..."
Hi Colleen
Please send me a video of the meeting as well
I am very interested in what is in the works
So far I am 9 months out of my PRRT treatments and my tumors are still shrinking and are stable
But as we know that won’t be forever
That said I met with Dr Starr in Ft Lauderdale to get his feelings on what he would suggest I should do next and he agreed with my NET specialist PRRT.
And that is what I did
I would Greatly appreciate hearing what he thinks is the next step yet again
Thank you
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Thanks very much for your efforts. I do appreciate whatever you can do.