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← Return to Histotripsy: My experience
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Hi @mnewland99! I've done 5 rounds of Naliri, it does make me nauseous for a few days. Latest CT scan showed that my liver lesions did not grow which is good, but they suspect lymph node and peritoneal nodules which are new. CA19-9 was coming down from 309 to 118, but went back up to 209 this last time. So funny that we seem to be tracking each other! I feel like we're comrades. Anyway I tried to get into the RMC-6236 trial at Dana Farber in Boston but they didn't have room for me. I am travelling to Mayo Clinic Jacksonville for appointments next week, to see what they have for me in terms of clinical trials, and whether they think histotripsy is a good idea for me. So far my oncologists have said no, because I need to continue systemic therapy, but I don't think that precludes histotripsy. But my liver lesion might be too big for histotripsy, 6 cm. We shall see! Once my 3 days of Naliri are over with, I tend to feel OK - still playing golf on the weekends! Wishing you the best!
Dale
Replies to "Hi @mnewland99! I've done 5 rounds of Naliri, it does make me nauseous for a few..."
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Yes, there seems to be a handful of us who regularly post on this board that seem to be on the same track. One thing to offer is that these 2 modalities are not exclusive, in fact many of the general clinical trials I see these days pair a chemo with the trial drug or vice versa. The IR Dr. said to continue chemo alongside the histotripsy (which is 1 treatment day). I had my Naliri 3 days after histotripsy which was great because the steroid they give with the chemo brought down the inflammation from the procedure on my liver. I pray the your health care providers steer you in the right direction! I'll let you know how I treat my peritoneal nodules. Did you have the distal or Whipple or did you have surgery? It's great that you can play golf still!