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Interested in your experience with treatments of PRRT vs surgery
Neuroendocrine Tumors (NETs) | Last Active: Aug 8 5:32pm | Replies (17)Comment receiving replies
In my wife's case, we did the surgery first, removed primary from lower pancreas, removed spleen, gall bladder,ablated some of tumors on liver. This reduced our our tumor count by about 70%. Our team then recommended 3 cycles of PRRT, which further reduced what was left to only the liver. At that point our team recommended a liver transplant, as the PET scan only showed at that point tumors in the liver. After multiple 2nd opinions, she had the tranplant in January 2025.
Replies to "In my wife's case, we did the surgery first, removed primary from lower pancreas, removed spleen,..."
Hello @kim1965,
I hope that your wife is recovering well from her transplant. Was the transplant done at Mayo? What type of follow up will she be having?
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Interesting. Did they use TAE also to reduce liver tumors? That was one of the first things they did to me. Not sure how much it helped, but gave me a high fever and zero appetite for several days.
I recall mentioning transplant offhand to the doctor doing the embolization. He wasn't too positive due to high recurrence rates. One problem he mentioned was that drugs needed to prevent organ rejection could interfere with cancer treatment. I doubt I would qualify anyway due to age and high grade NET.