I'm angry about peripheral neuropathy, let's take action.

I've received both positive and negative comments about posting on my lessons learned about PN. My comments have come from the dark side of the situation. We have too few specialists and too few research dollars being spent on our problems. We number in the millions and yet our needs are not being met. I have a letter that I've written that will be sent to all my congressional people in Tennessee. I encourage you to copy and modify the letter and send it to all the congressional members in your state. I'm taking action and encourage you to do so. If you belong to other forums please encourage them to participate. I suggest that you send the message from your personal email.

Dear Congressman/Woman

As an active voter I'm upset at the direction our country is taking on health care. Particularly I'm very upset at the money being spent on research and care of those suffering from peripheral neuropathy (PN). Our numbers are very great as is the suffering associated with this disease. We number in the many millions. Please stand up and take notice on this silent population.

This disease has many forms. Look at your voters and you will see many who have difficulty walking. For each one you see there are many who are homebound and in great pain. We are a silent and largely neglected community.

Much is spent on research and care for cancer, heart disease and other chronic conditions. This is money well spent. BUT where are the research dollars for PN?

I am very disappointed in services provided to our growing numbers. There are many areas of research that need to be explored beyond our simple pharmaceutical approaches. We need a caring congress to reach out and recognize our situation. We are a needful and growing ANGRY voting group in need of congressional action.

There are many problems in our country. We are one of many. At this time it is we look for champions to emerge for our cause. As a voter, I will be following your actions and positions on many issues. I fully expect you and your staff to become more aware of PN and take action on this issue of great need.