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Lymphedema - new support group: Let's connect

Lymphedema | Last Active: 6 days ago | Replies (67)

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I am also hoping to learn more about lymphedema treatment for my full leg issue. I am seeing an OT for therapy and thus far have experienced the lymph massage and pump. I was just measured for my full leg compression garments (Medicare covered, thank goodness) and I do have questions for those who are living with this disease.
-Do you recommend a zippered garment for ease of getting on & off? I am considering this for my nighttime leg stocking.
-Best fabric for pants/jeans so that they don’t stick to the covered leg?
-Favorite low Ph cream with no fragrance that might be Yuka approved as well?
-Rollers?
-Home pump? And/or certified lymphatic drainage massage therapists?
-Do you ever go without the leg garment for special occasions? If so, do you wear OTC compression socks or pantyhose? Is it that much harder to get your compression garment on afterwards?
-Helpful hints?
Thank you!

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Replies to "I am also hoping to learn more about lymphedema treatment for my full leg issue. I..."

I have lymphedema in both legs but a little worse in my right leg. I was prescribed 20 to 30 mmHg compression socks for the daytime but I take them off at night. I found putting the socks on to be the pits even with demos from the PA and using one of those devices that is supposed to make it easy (not for me). I put up with them for about 3 months before finding some zippered 20 to 30 mmHg compression socks. They are easy on, easy off and seem to be working OK for me. I also try to sleep with my feet elevated slightly above my heart to help with the drainage. Until I bought an adjustable bed, I put a couple of folded blankets under the mattress at the bottom of the bed to raise it slightly. At night, I put a moisturizer lotion on the feet and legs and wear a pair of loose diabetic socks.

My advice…. Go to a certified Lymphatic Drainage Massage PROFESSIONAL. These therapists are either OT or PT’s with special training. Insurance will cover this with a diagnoses. Therapy, special garments, bandaging etc are all part of the process. You can’t just hit and miss your treatment…. It’s very specific. I’ve been in therapy over a year and just now can move to the next step which is liposuction. Another year of therapy and hopefully I will be ready for the next step… Lymphatic Bypass and Transplant. As of Jan 2024 Lymphedema supplies are covered by insurance. So go through the process and hopefully, with a lot of hard work you’ll have success.