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Does anyone have gluteal tendinopathy? Any successful treatments?
Chronic Pain | Last Active: 2 days ago | Replies (68)Comment receiving replies
Could you please tell me what dose of LDN you are taking for the gluteal tendinopathy? Also, did you start low and titrate up? (I have heard variously that titrating is and isn't necessary.). I was taking 4.5 mg last year for stenosis and glute pain, and it seemed to be working great, and then suddenly quit working. I would like to try it again, but my current doc is clueless about dosages.
Replies to "Could you please tell me what dose of LDN you are taking for the gluteal tendinopathy?..."
@bayhorse
Hi, BayHorse -
I think you mentioned your "butt" surgery was helpful. Would you please tell me who the surgeon was and in which city the surgery was done. I, too, have gluteal tendinopathy with high grade tendon tears and tears in the med and minimus glut muscles, but I also have atrophy and fatty infiltration. Don't know how that happened since I've been an active weight lifter and hiker for decades. Any info you can provide would be great.
Thank you,
Joanne DePhillips, M.D.
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I originally started taking LDN for my lumbar and sacral spine pain 2 years ago. I have degenerative disc disease, mild scoliosis and arthritis, all of which I've been getting help with for 10+ years. My sacroiliac joint is a mess too. BTW I am now 72 years old. I started LDN for that pain, 1 mg then 2mg then 3mg and now 4mg. Yes, it also stopped helping as much as I wanted after almost 2 years. So I stopped taking it and OTC pain meds to find out just what my baseline really is. It is HORRIBLE, I have never been as miserable as I was during that week when I stopped taking everything. In the meantime, it was 'discovered' that I have gluteal tendinopathy (GT) in my left hip, and that is what was the major source of pain now. A specific MRI of the hip was done, I don't know technical terms for what. I had gone back to the Spine Clinic for reevaluation after not seeing him for a year and a half. BTW the doc was arrogant and condescending, but I convinced him to do the MRI any way. It revealed GT and a few other messy things going on in that hip. I have a separate pain management doctor who is a neurosurgeon that got tired of the hospital BS and opened his own offices specifically for pain management. He is who I get the Naltrexone from and have gotten steroid injections for the lumbar spine as well as trigger point injections. So, when I resumed taking Naltrexone it has helped quite a lot, but I am not pain free ever. But I can still function in spite of the pain.
I'm not sure how much longer I can tolerate it, but there is no alternative. There is no surgical remedy for GT, only meds and physical therapy from someone who knows exactly how to work with GT. BTW doing the "clams" exercise is contraindicated in cases of GT, it makes it worse. Hope I answered your questions and forgive the long rambling nature of my reply. I could write a book about this stuff. Good luck to you bayhorse.