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Reclast infusion

Posted by eead @eead, May 20 11:12am

I had the Reclast infusion at the end of February 2025. Since then I have had great pain in different parts of my body. I have gone from being a very active person (walking, gardening, exercising, etc.) to being unable to do most things. The pain is especially bad at night in my lower extremities, causing me to have difficulty sleeping. The pain management doctor wants me to have a spinal epidural for narrowing of the spinal and foramanal canals because the pain in my back, buttocks, thighs, and legs is so bad. Could the Reclast be causing some of this pain? If so, is there any way to reverse the Reclast?

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harborside24 | @harborside24 | Aug 8 7:46am
In reply to @loriesco "Agreed. The only people who reach out are people who HAVE side effects. People should speak..." + (show)
Profile picture for loriesco @loriesco

Agreed. The only people who reach out are people who HAVE side effects. People should speak with their doctors and there are ways to avoid the possibility of side effects by slow infusions and taking NSAIDs before the infusion. I think its only 10% of ONE PERCENT who have side effects and it goes down much further on the second. The people who have side effects are possibly the ones who really BENEFIT from the meds.

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I was also told to take Claritin the day before the infusion (I did two days before), the day of, and the day after (I did two days after) to minimize a reaction. This was in addition to the Tylenol and extra hydration. It's sad that many doctors and infusion center personnel are not familiar with what the original protocol was during the Reclast clinical trials. At least give patients the information, and they can choose whether to follow the recommendations or not.

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4 replies
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niifty1 | @niifty1 | Aug 8 9:06am
In reply to @loriesco "Agreed. The only people who reach out are people who HAVE side effects. People should speak..." + (show)
Profile picture for loriesco @loriesco

Agreed. The only people who reach out are people who HAVE side effects. People should speak with their doctors and there are ways to avoid the possibility of side effects by slow infusions and taking NSAIDs before the infusion. I think its only 10% of ONE PERCENT who have side effects and it goes down much further on the second. The people who have side effects are possibly the ones who really BENEFIT from the meds.

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My doc said 15 minutes! What time should I ask for??

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2 replies
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niifty1 | @niifty1 | Aug 8 9:10am
In reply to @harborside24 "I was also told to take Claritin the day before the infusion (I did two days..." + (show)
Profile picture for harborside24 @harborside24

I was also told to take Claritin the day before the infusion (I did two days before), the day of, and the day after (I did two days after) to minimize a reaction. This was in addition to the Tylenol and extra hydration. It's sad that many doctors and infusion center personnel are not familiar with what the original protocol was during the Reclast clinical trials. At least give patients the information, and they can choose whether to follow the recommendations or not.

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How long was your infusion?? Doc said mine 15 mine!

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1 reply
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njx58 | @njx58 | Aug 8 10:21am
In reply to @niifty1 "My doc said 15 minutes! What time should I ask for??" + (show)
Profile picture for niifty1 @niifty1

My doc said 15 minutes! What time should I ask for??

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15 minutes is supposed to be the minimum. You can (and should!) ask for a slower drip.

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1 reply
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loriesco | @loriesco | Aug 8 11:08am
In reply to @niifty1 "How long was your infusion?? Doc said mine 15 mine!" + (show)
Profile picture for niifty1 @niifty1

How long was your infusion?? Doc said mine 15 mine!

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15 minutes makes no sense to me. My first infusion was 30 or an hour. The time will be increased not reduced.

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loriesco | @loriesco | Aug 8 11:10am
In reply to @harborside24 "I was also told to take Claritin the day before the infusion (I did two days..." + (show)
Profile picture for harborside24 @harborside24

I was also told to take Claritin the day before the infusion (I did two days before), the day of, and the day after (I did two days after) to minimize a reaction. This was in addition to the Tylenol and extra hydration. It's sad that many doctors and infusion center personnel are not familiar with what the original protocol was during the Reclast clinical trials. At least give patients the information, and they can choose whether to follow the recommendations or not.

Jump to this post

agree totally. Plus, I had just come out of a double spine surgery - I should have delayed it. My bad.

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harborside24 | @harborside24 | Aug 8 11:19am
In reply to @niifty1 "My doc said 15 minutes! What time should I ask for??" + (show)
Profile picture for niifty1 @niifty1

My doc said 15 minutes! What time should I ask for??

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They told me 30 when I got there, and I said no, my doc and I had discussed at least 45. So 45 is what I got!

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niifty1 | @niifty1 | Aug 8 1:32pm
In reply to @njx58 "15 minutes is supposed to be the minimum. You can (and should!) ask for a slower..." + (show)
Profile picture for njx58 @njx58

15 minutes is supposed to be the minimum. You can (and should!) ask for a slower drip.

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Thank you!!!

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jozer | @jozer | Aug 9 8:29am

My infusion center said they have never done a slower than 15 minute infusion. Doc gave me little prep instruction other than be hydrated (how much how long?) and take Tylenol (starting when and how long?) if necessary. Extremely grateful for sites like this where you can get the information about osteoporosis and its treatment; doesn't come from the doctors imho!

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brendammc | @brendammc | Aug 10 2:09pm
In reply to @harborside24 "I was also told to take Claritin the day before the infusion (I did two days..." + (show)
Profile picture for harborside24 @harborside24

I was also told to take Claritin the day before the infusion (I did two days before), the day of, and the day after (I did two days after) to minimize a reaction. This was in addition to the Tylenol and extra hydration. It's sad that many doctors and infusion center personnel are not familiar with what the original protocol was during the Reclast clinical trials. At least give patients the information, and they can choose whether to follow the recommendations or not.

Jump to this post

Why the Claritin? Is that for everyone?

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