Reclast infusion
I had the Reclast infusion at the end of February 2025. Since then I have had great pain in different parts of my body. I have gone from being a very active person (walking, gardening, exercising, etc.) to being unable to do most things. The pain is especially bad at night in my lower extremities, causing me to have difficulty sleeping. The pain management doctor wants me to have a spinal epidural for narrowing of the spinal and foramanal canals because the pain in my back, buttocks, thighs, and legs is so bad. Could the Reclast be causing some of this pain? If so, is there any way to reverse the Reclast?
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May I ask why you want a fourth year when ReClast stays in the bodyfor years and even 1 infusion may provide protection for up to 10 years?
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1 ReactionThanks for commenting. The first 2 years there was no improvement on my Dex score but my 3rd year I finally had improvement. I was advised the ReClast doesn’t stay in one’s system that long (10 years). Because I have ‘plates and screws’ as a result of broken bones both vertically and horizontally, I want to improve the density but not have the negative outcomes.
This is a genetic thing for me and I am a very active person and want to continue on without another broken bone this year. Thanks for your insight.
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1 ReactionI’m just new to this group… but I just had the reclast infusion.. I wouldn’t advice my worse enemy to get it… It’s been 10 days and I’ve been literally in bed with such pain, I thought I was having a flare up with my RA so I took my methprednisone pack and it did nothing .. because it wasn’t my RA …
My general practitioner adviced me not to get it again!
I would love to know if you have it and if the side effects are the same.. I pray that they aren’t!
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2 ReactionsI’m sorry to hear you’re feeling so awful. No I have not had the Reclast infusion yet. I think I’m going to wait until my follow up DEXA scan in February, see how much if any my numbers have changed and reevaluate. I’ve heard terrible things about how sick many become after Reclast and I’m not sure it’s worth the risk. Thank you for sharing your experience.
Had my Reclast early July 2025. Joint pain started four days later and on the sixth could not walk for an hour and a half; a lot of swelling in both knees and felt like lead weights had been put on. My rheumatologist said I was on the 3 percent that gets adverse effects and said it could take two weeks to two months to go away. Weird thing is that in a week I was fine! Been hiking this month and all is fine!
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2 ReactionsThat is great. I still have considerably more joint and arthritic pain a year later. Not sure if this is normal aging or something caused by the Reclast infusion. Plus now I see from a poster on this discussion that her oral surgeon would not do dental implants for her since she had used Reclast. I regret having agreed to the infusion. I'm glad your pain was brief.
I’m so glad yours just lasted a week… you know the pain..
I can’t wait till I’m there it’s going to be 2 weeks tomorrow.. still can’t lift my arms .. I don’t want get discouraged!
So happy for you that you are back to hiking etc..I’m so happy for you!
It makes us realize how blessed and grateful we are for a healthy body when things like this happen!
God bless !!!
If someone read only the comments here, they'd conclude that there is a 100% chance of bad side effects with Reclast. That is not the case. That isn't to dismiss the people who have had issues, not at all, but the majority do NOT have a problem.
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5 ReactionsAgreed. The only people who reach out are people who HAVE side effects. People should speak with their doctors and there are ways to avoid the possibility of side effects by slow infusions and taking NSAIDs before the infusion. I think its only 10% of ONE PERCENT who have side effects and it goes down much further on the second. The people who have side effects are possibly the ones who really BENEFIT from the meds.
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1 ReactionI had the Zometa which is the same as reclast. I thought I did pretty well until about 4 days later. I felt so sick and achy. I had some regular labs ordered at the same time and found that my kidney function had dropped dramatically. I am due another in 6 months, but I don’t think I could survive that again. It was terrible.
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