Little Dad update —
We are now 15 months post diagnosis and craniotomy, radiotherapy and chemo.
It’s been a rollercoaster of a ride.
But Dad is still doing well slightly more confused and muddled than usual but other than that he’s still singing in his band, playing boules and living life, been on a cruise etc and fighting this hard. With 8 weekly scans throughout.
This week dad had a review, he’s had a small tumor just not doing much since 5-6 months ago, this week they told us they couldn’t tell if it was pseudo progression (mimic) or true progression. And to monitor. The day after we received a call to say they have reviewed all of his scans with all the team, and they feel it’s real progression .
We were told this means the chemo hasn’t worked, and the next line of chemo has a5% chance of working and the side effects are harsh. They have advised he have another craniotomy to remove this new area, which it is on the top of the brain and easy to get too.
What a rollercoaster..
Dad is still in denial and doesn’t believe this is what he has.
Then we were told this Op will give him come more time, that was just heart wrenching.
Each time something happens it’s like an awakening to what’s going on, and you realise this is still happening, because we have a way of shutting it out to cope.. so you start greaving all over again.
now we wait for the discussion with the neurologist and get a date.
I truly sympathise with all of you going through this process, and families.. because this is the hardest thing..
Now I am left wondering how long will he grab back from cheating death? 6 -8 months ???
Thinking that our family holiday could be our last, or Christmas etc is so very hard. But at least we know he’s on borrowed time, so we can really appreciate him and love him..
life really is tough xx