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How long were you on Orgovyx, Xtandi, Talzenna? Fatigue unbearable
Prostate Cancer | Last Active: Aug 6 7:49pm | Replies (65)Comment receiving replies
Well here it goes. Just found the cancer I have is aggressive and prior to nubeqa and shots has spread from prostate to the entire pelvic area and northoftheborder was right its probably meststatic to my spine. Called PCP I'm to see the Urologist on the 12th im.assuning the will do a PSA and nothing much else they can do
Replies to "Well here it goes. Just found the cancer I have is aggressive and prior to nubeqa..."
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It's not necessarily true any more that there's nothing you can do once you learn you have metastatic prostate cancer. There are lots of options in 2025:
1. I think you're already on ADT + Nubeqa (Darolutamide). As a combination, they may stop the cancer from spreading any further for a long time just on their own.
2. If there are just a few metastases (oligometastatic), they may offer radiation therapy for the individual metastases. That has shown huge
survival benefits in recent studies. Ask about "MDT" (metastasis-directed therapy).
3. If there are many metastases (polymetastatic), they may offer chemotherapy and/or Pluvicto to hit the cancer early and hard. Ask about "triplet therapy."
4. They may offer radiation to the prostate itself if you haven't already had that (or a prostatectomy). Ask about "primary tumour radiotherapy."
Taken together, these new approaches to treating metastatic prostate cancer with "curative" intent have been revolutionary for patients in our situation: some oncologists even believe metastatic prostate cancer is on the verge of becoming a long-term chronic disease that can be managed indefinitely.