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Profile picture for bestrongnow @bestrongnow

Yes, his specialty is ILD, but you bring up an interesting point. I saw another pulmonologist first, and I may give him a call and ask if he believes I should. The first month is $13;000: My plan covers $12. They have foundations one can apply to help with the cost.

I spoke with the specialty pharmacy and there are just two drugs for treating ILD. OFEV is one pill twice a day. the other is 12 pills a day!!

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Replies to "Yes, his specialty is ILD, but you bring up an interesting point. I saw another pulmonologist..."

kdalda75 makes a good point about second opinion with a pulmonologist with a subspecialty in your disease. I have both lung cancer and pulmonary fibrosis. My first Pulmonologist whose subspecialty is lung cancer sent me to his colleague who specializes in Interstitial Disease for a consult to see if I should be prescribed an antifibrotic (Olev or Esbriet) for my pulmonary fibrosis and dropping lung function test values after radiation treatment. After looking at my records, the colleague thought I might have stabilized and put me on oxygen instead. I have stayed stable for a year now so have not needed an antifibrotic. I have my lung functions tested regularly to stay on top of things.