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Interested in your experience with treatments of PRRT vs surgery

Neuroendocrine Tumors (NETs) | Last Active: Aug 8 5:32pm | Replies (17)
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Thanks so very much for sharing your experience. Did the doctors give you their reasons for recommending surgery vs PRRT? I am glad you seemed to do well on the PRRT treatment and got outstanding results. i know what they have discussed with me is 8 months of treatment. One every two months. So if I understand I should plan on 8 months of threatment and another 8 months afterwards to feel like I have regained energy. I know everyone is different, but i am 78 yrs old also. Trying to understand what the treatment might mean for travel plans. Thanks again for sharing.

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Replies to "Thanks so very much for sharing your experience. Did the doctors give you their reasons for..."
dbamos1945 | @dbamos1945 | Aug 7 1:24am

@splendtous: I hope you are getting helpful information to form your decision on NET cancer tumor progression.
You asked about proposed surgery plans: the NET surgeon I consulted with referred to current Dodotate Gallium PET scan. His plan was to remove 1/2 stomach, some small intestine (including primary), reconstruct stomach/intestine pathway, top of right lobe of liver (included the portal vein), spleen & gallbladder. I admit I tend to shy away from invasive procedures, but i had great concern for the prolonged time to heal resulting in return to a quality of life as before surgery. At my age I preferred taking the risks of radioactivity’s chance of leukemia. During my PRRT 4 Luathera treatments (from June-December 2024) I had no proof that my disease was responding well until my Evoist MRI in January 2025. I looked at this difficult decision as a “crap shoot”… no guarantees!
In this disease we are dealing with, we aren’t fortunate to look for “cures”, but rather trying to add more good quality of life to our existence.
I hope you will feel confident in your decision for treatment. I hope my words help in some small way. Best… dbamos1945

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