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Interested in your experience with treatments of PRRT vs surgery
Neuroendocrine Tumors (NETs) | Last Active: Aug 8 5:32pm | Replies (17)Comment receiving replies
What was the timing of the two treatments PRRT and surgery? Which came first and do you know why they chose one to go first? Did you have growth in the tumors and then they decided on the next treatment? Thanks for sharing your experience.
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I had PRRT from May to November, 2024.
At various times I had different doctors, who said different things about surgery. First that is wasn't feasible, then that it was an option but might require two surgeries. I had good response to PRRT with size reduction that made one surgery an option, as confirmed by scan in November. From some reading I've done this seems to be a common sequence.
In March the scan was even better, so much so that I at first dismissed some symptoms I had in late March/early April, 2025. In April I ended up back in the hospital, and the surgeon thought the best option was to go ahead while I was there and he had openings.