Hi
I'm a little late to replying here.
My husband has metastatic PC too. PSA was close to 300, CT scan then showed cancer outside the prostate which put it at advanced, then biopsy showed mostly gleason scores of 8 and 9 (a few 7s) Then PSMA Pet scan showed it everywhere! hips, pelvis, bones, lymph nodes both near the prostate and near the neck, innumerable lesions in lungs and I think that was it. Oddly enough my husband is not in pain, his problem was peeing a lot and some ED but last year was hard for us as we took care of his parents and they passed away, so the ED we thought was stress and a little pill worked sometimes 😉 I'll also say my husband is 55, eats right (eats perfectly NOW!) exercises daily- always has. He got diagnosed in February or at least that's when it all started.
Oncologist put him on ADT right away- it took QUITE some convincing!! anyways, monthly Firmagon shots (could have switched to lupron after the first firmagon shot but my husband is sticking with this for now) then eventually daily ADT pills (zytiga with prednisone), it had to be delayed because my husband had tried to take a bunch of supplements and in the end wrecked his liver (long story) but once his liver was normal again he started the pills. Now he's in the middle of Chemo (round 4 of 6 is tomorrow) and overall he's doing ok!
He's weaker and more tired, but nobody would know by looking at him, he also just looks like he has a buzz cut as he didn't lose all his hair, it's come out in chunks!
I know that it's important to eat right and exercise while on ADT and force yourself to do it, it seems to help my husband a lot!!
He IS under palliative care and now getting disability, but he's not old and frail and dying- well statistically and medically he IS, but we try to live each day to the fullest! Keep our faith in the Lord and press on!
I'm taking it harder because I don't want to be a widow so soon, after losing my in-laws in the fall and my mom two weeks after my husband's diagnosis, I do get down and depressed, but try to stay strong. We have 4 children (2 are adults, but 1 is a recent graduate and still lives at home while working, so 3 kids at home)
My husband is 100% fighting it now, which is quite the change from when it first hit us, he thought he was going to die soon, as statistically 35% make it 5 years, that's still in the back of our minds.
I'm certainly not looking forward to the "old and frail" hospital days, as I still have memories of my in-laws in and out of the hospital and hospice and nurses etc.
I guess I'm just commenting to say, hang in there, you're not alone!!