← Return to Undiagnosed Autoimmune Disease

Discussion
dstone501957 avatar

Undiagnosed Autoimmune Disease

Autoimmune Diseases | Last Active: Sep 18, 2025 | Replies (44)

Comment receiving replies
Profile picture for dstone501957 @dstone501957

My left vocal cord was found to be paralyzed from imaging in 10 day prior to surgery. After seeing an ENT, the Orthopedic Surgeon was cleared to go anterior (through front). Literally 15 min prior to being wheeled into OR, the Surgeon decided to go posterior. He did not want to risk damaging my right vocal cords. Knowing what I know, I would probably not gone through with it. Posterior Cervical Surgery is one of the top 5 most painful surgeries to recover from.

I know SBF is ruled out and the Neurologist kept saying she saw signs of early stage Parkinson. She has never bothered to contact me to discuss the Skin Biopsy results. I called up and asked for a the report to be placed in the portal. This was actually the 2nd attempt with skin biopsy. The first skin sample was rejected due to being sent to lab in an expired fixative (preserving solutioon). Sounds like we had similar Surgery. I will get back.later. I have a lot of horror stories from my 2 plus year ordeal.

Jump to this post


Replies to "My left vocal cord was found to be paralyzed from imaging in 10 day prior to..."

I’m new here but what jumped out at me is the failure of doctors in getting back with patients? Until Medicare Advantage and EMR, this was never a problem. I developed dysarthria and problems using my right hand for buttoning buttons, writing, etc. Weakness has been progressive to the point where I cannot use my rt arm. My PCP ordered a brain MRI in 12/24. It was in my portal within 24 hours of the date performed 01/11/25. My PCP never returned my calls & cancelled my follow up appointment. Went to scheduled neuro appointment as she did schedule that, but failed to send preauth so he rescheduled for 2/25. November one has explained my brain mri, which was abnormal. To this date, I have no explanations and no diagnosis. The ER doctor and my new PCP believe it’s an autoimmune disease and that I need help from a more advanced facility. Any similar problems. I now require a walker to ambulate. My condition worsened after having COVID in January 2025.