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DiscussionUndiagnosed Autoimmune Disease
Autoimmune Diseases | Last Active: Sep 18, 2025 | Replies (44)Comment receiving replies
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I’m new here but what jumped out at me is the failure of doctors in getting back with patients? Until Medicare Advantage and EMR, this was never a problem. I developed dysarthria and problems using my right hand for buttoning buttons, writing, etc. Weakness has been progressive to the point where I cannot use my rt arm. My PCP ordered a brain MRI in 12/24. It was in my portal within 24 hours of the date performed 01/11/25. My PCP never returned my calls & cancelled my follow up appointment. Went to scheduled neuro appointment as she did schedule that, but failed to send preauth so he rescheduled for 2/25. November one has explained my brain mri, which was abnormal. To this date, I have no explanations and no diagnosis. The ER doctor and my new PCP believe it’s an autoimmune disease and that I need help from a more advanced facility. Any similar problems. I now require a walker to ambulate. My condition worsened after having COVID in January 2025.