Connect
← Return to pT3b - what were your radiation outcomes after radical prostatectomy?
Discussion
pT3b - what were your radiation outcomes after radical prostatectomy?
Prostate Cancer | Last Active: Aug 11 4:08pm | Replies (11)Comment receiving replies
I figured that your restriction, that you only wanted people with a T3b stage to answer, would end up in almost no responses. Actual results were zero.
Many people with different stages of prostate cancer could answer your question, And supply you with some useful feedback, But your limitation was too strict.
You might post a message without asking for the T3B stage requirement, And you will get a lot of responses.
I had a T2c and the prostatectomy gave me 3 1/2 years Before a reoccurrence. I had salvage radiation when my PSA hit .2 and 2 1/2 years later it came back again. Two more reoccurrences later I’ve gone 20 months undetectable. The T2c Means that the cancer has gotten into both sides of my prostate, but not outside it. This started 15 years ago And four years ago, I found out I had BRCA2 and that is the reason it keeps coming back. I am now on a lifetime of ADT and ARSI’s followed by a PARP Inhibitor when they fail.. Problem is it’s probably going to come back so that lifetime is going to be limited by whatever drugs are available when I Have my next reoccurrence.
Your cribriform, ECE and positivity margins call for long term ADT and ARSI. Something to discuss with your doctor.
You really should get a decipher test. That will tell you whether or not your cancer is likely to reoccur. In your case, it’s probably going to be very likely.
Replies to "I figured that your restriction, that you only wanted people with a T3b stage to answer,..."
Connect
Thanks for the message. The first question posed via e-mail for my Urologist was: "Why didn't you do the Decipher test?" His first response was that my insurance wouldn't pay for it. I was suspicious of that. I then told him that "I deserved to know of any requested test that was denied, so I could consider paying cash for it." That e-mail exchange was about 3 weeks ago, well after my biopsy in mid-December 2024. Then last week at my 3-month, post-catheter removal follow-up, I asked again. At that point he said that it is moot for two reasons: 1) You only do the Decipher test on biopsied tissue, not post-radical prostatectomy (RP) surgical tissue, and...2) The surgical pathology report revealed everything we need to know: EPE, Surgical Margins, Cribriform Glands, Left Seminal Vesicle invasion.
I have read numerous posts and comments that infer that the Decipher test can be done on post-RP surgical tissue, and when I said that to my Urologist, his face kind of scrunched up like "what?", and he said: "no, and again at this point the Decipher test won't tell us anything that we don't know now." I don't know who or what to believe.
Also, I am confused by your description above. You say "I had a T2c and the prostatectomy gave me 3 1/2 years before reoccurrence." That tells me that your prostate has been removed. But then you offer: "The T2c means that the cancer has gotten into both sides of my prostate", conveying that you still have your prostate, but not outside it."
I did have a Genetic Screening (oral/buccal swab) done that included dozens and dozens of genes including BRCA 1 and BRCA2. I was 100% Negative for any/all cancer genes or mutations of any kind. I had one guy comment that there are many genes, and that my screening likely didn't include them. Don't know what he was talking about...I was screened for what was important in prostate cancer and all cancers in general.