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Chronic severe nocturnal hypnic headaches
Headache & Migraine | Last Active: 3 days ago | Replies (277)Comment receiving replies
Thank you for such an immediate response and for being so supportive. I am waiting on 3 different scans to be scheduled by a new neurologist that is associated with Duke so far. I’ll contact the Dr. you recommend today! I’ll start to also keep note of when I get them. So far I notice it’s about 3 hours or so into sleep usually. I drank a cup of coffee last night before bed. I woke up with a horrendous headache BUT it never throbbed like the others and it didn’t turn into a full episode as I call them. I immediately took a Ketoralic. I was able to get through it and back to sleep. Woke up in a lot of pain and I’ll take Advil when it’s time and hope the Dr can see me soon! Thank you thank you thank you.
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I am so so glad you will see Dr. Sacco and are seeing an MD affiliated with Duke university. I am not aware of their headache MDs or research, but hope you will get the support you need. And if you are taking lots of NSAIDS (ketorolac--I take the injectable version acutely to avoid ER; and Advil) you might ask your MD about ways to prevent gastric bleeding. It's not fun and can be serious. I have had no more gastric crises since adding Pantoprozole to my regimen (since I am a chronic user of Indomethacin and occassional Ketorolac or Motrin). My amazing Mayo MD (Dr. Mark Whealy) does not like long term use of Indomethacin but it's the only NSAID that works for me. I hope and pray hope is on the horizon for you!!