I was 1st dx w/ PMR about 10 yrs ago. After about a yr I went into remission til around this Christmas. At 1st I just thought my aching was arthritis but it got worse and I remembered the PMR. I was going on a cruise and would be at sea for awhile so my provider put me on 5mg which help but slowly the pain increased. I tried to get in to the Rheumatologist but have been waiting 6 months. In the meantime my PCP has been trying me at 5mg x 2wks, 4mg×2 wks etc. Still having lots of arm pain. Can't even pull the covers up in bed! So frustrating. He bumped me back to 4mg but til I finally see Rheumatology next week. Now my right hip is involved and I feel like I did w/ sciatica. Ugh! Topical doesn't help. I've been taking the 4mg at bedtime w/ 800mg but and am getting some sort of sleep. Still hurts to roll over, if I even can. In the am I'm stiff but everything seems less painful and I can do my ROM exercises. But as the day goes on... Dreading the night. So glad I found this support group!❤️