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Undiagnosed Autoimmune Disease

Autoimmune Diseases | Last Active: Sep 18 5:43pm | Replies (44)

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Profile picture for fessenbeck65 @fessenbeck65

I hope you can find a Dr that can help you!
I have 2 add to immune diseases and I have struggled for years.Pemphigus Foleausus (allergic to my own skin,) environmental and food allergies, anaphylactic reactions, chronic hives, joint pain all over, 5 fractures in 4 yrs, asthma. Been to multiple allergist immunologist and got no answers other than your case is too complicated for them . I just went to Barnes Jewish Hospital/Washington and seen a an allergist/immunologist, and she diagnosed me with mass cell activation syndrome And she is recommending Xolair injections. She thinks the injections will calm down my cells so they’re not so reactive to any everything I put in my mouth, causing the anaphylactic reactions etc, plus hopefully help reduce inflammation in my body and help my asthma. Just waiting to see if insurance approves the Xolair injections🙏
I take zyrtec 2 x a day, Sudafed 12 hr,
Flonase, nasal spray, Atrovent nasal spray, montelukast, Dulera inhaler, Pepcid, natural meds from holistic Dr to help calm immune system and Mast cell activation ( he has helped me so much)
Anyone have any suggestions?

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Replies to "I hope you can find a Dr that can help you! I have 2 add to..."

Yikes! You asked for suggestions and I have one. Low Dose Naltrexone. It can "reboot" the immune system. There's a lot of stuff on line. Read about it first. Very few, if any side effects.