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Newly diagnosed and confused over treatment for lichen sclerosus

Autoimmune Diseases | Last Active: Aug 9 10:57am | Replies (114)
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Profile picture for sujett @sujett

I think I need a specialist who knows how to tx the lichen with an underlying Coup de Sabre (type of sclerotic skin). I’m in southern Ca Inland Empire and have spent almost 2 years until someone actually diagnosed my lesions. Not certain all we’re doing is the best treatment. Advise please!?

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Replies to "I think I need a specialist who knows how to tx the lichen with an underlying..."
Becky, Volunteer Mentor | @becsbuddy | Aug 5 4:21pm

@sujett you can try contacting one of the following organizations:
NORD, National Organization for Rare Diseases https://rarediseases.org/
Or GARD, Genetic and Rare Diseases. https://rareddiseases.info.nih.gov/
The 2 organizations keep a list of physicians whose speciality is rare diseases. They may or may not have names in your area, but you could always drive!
Because of all the changes in Washington, DC., the organizations may not be fully staffed.
Will you contact one of the organizations and let me know what you find out?

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