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Please tell me everything re Orgovix - is this the latest and greatest
Hello! I am a caregiver for my 84 year old father. He is just starting this journey. His doc wants to put him on Orgovix and then start radiation. Should he add anything to this? Is this the best option?
My husband had prostate cancer 6 years ago, we when to Mayo clinic, had surgery and he is cured! I wish my dad could have the same surgery but I guess that is not an option. Thanks for any wisdom!
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How old is your husband? Can he get surgery?
He turned 70 last week. The doctors didn't recommend the surgery because there would still have to be treatment for the lymph nodes outside the prostate. He has always been so healthy.
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1 ReactionYes, if there's any known spread outside the prostate (even local), then surgery rarely makes sense. Radiation (if he chooses) can spread and deal with cancer near the prostate as well as the cancer in it.
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3 ReactionsHe is completing his 5th week of radiation this Friday. He was tattooed, so as to make the radiation specific and I know that is so much better than it was in past times. I am also wondering if the effects of the radiation continue after his treatment. Diarrhea, difficulty with and frequent urination.
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1 ReactionSadly those side effects will be with him for awhile. We are all different so there is that. I am 5 months post radiation (25 sessions EBRT) and still have some bowel, bladder and urethrae issues but nothing like my first couple of months post radiation which were miserable.
Have your Dr. prescribe him Flomax to help with difficulty urinating. Helped me when I was taking radiation. The radiation is cumulative so the worst is toward the end of the sessions. I was on one a day during treatment, two a day right when I finished treatments for maybe a month, then went down to one, and I'm off it now 3 months later.
Thank you so much for that. During our last visit with the medical oncologist, a few weeks ago, I mentioned his low libido, and that I had heard if you took Cialis it might help to thwart atrophy and also easy urinary concerns. The oncologist gave him a Cialis prescription. Do you know if it is ok to take Flomax when taking Cialis.?
Thank you so much for sharing your situation. It isn't good news but it is important to be aware of what to expect and to ensure that expectations are reasonable.
I’ve been on Orgovyx for a month. Only side effect thus far is dry mouth which subsides fairly quickly. PSA dropped from .553 to .140. The standard of care as was explained to me by my medical oncologist at Mt. Sinai is combination therapy.
A study he presented at a conference showed Orgovyx with Nubeqa resulted in a longer more stable lower PSA and better quality of life. Orgovyx decreases testosterone. Nubeqa prevents any free testosterone floating around from stimulating cancer cell growth by blocking it from binding to the cells.
Most people get over radiation side-effects in a few months. A small minority (including me) don't, but I have no regrets — better alive with some occasionally-irritating side-effects than option 2.
(They do get easier to manage over time, even if they don't go away completely.)