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Negative Turn in a Long Journey

Pancreatic Cancer | Last Active: Oct 1 5:03pm | Replies (102)

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I officially signed up for the trial last Friday, had a baseline CT scan done this AM and will start treatment a week from tomorrow. I am in the trial arm that is QTX3034 twice a day orally and Cetuximab (Erbitux) via infusion every other week. I actually go weekly the first 4 weeks, but then will be on the biweekly schedule. My CT scan this AM showed little or no change to the various areas that showed up on my original questionable scan on 5/28 so that's a plus. "Indolent" metastases for sure, at least at this point.

I'm trying to stay positive and am ready to get started. A bit anxious, however, about the almost certain side effects of the Erbitux in particular the skin problems. I have been told I can start prophylactic Doxycycline to help prevent that from getting out of hand. Anyone else have any experiences/strtegies with that type of side effect from taking EGFR's? I guess one thing I have going for me is I had terrible acne as a teenager so maybe it will make me feel 50 years younger? LOL

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Replies to "I officially signed up for the trial last Friday, had a baseline CT scan done this..."

@wpprescott Side effects vary and you can either feel like a teenager or you may not get side effects. Other than loss of hair, my husband had very few side effects from Gem-Abraxane over 15 months. The subsequent radiotherapy to deal with local recurrence was terrible and 3 weeks after the end of that he is still having side effects. So everyone is different. You sound positive and that is a good start. All the best!!