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Questions for people taking Actemra and Kevzara injections
Polymyalgia Rheumatica (PMR) | Last Active: Aug 11 8:03am | Replies (42)Comment receiving replies
My doctor had to jump through some hoops to get Actemra approved for PMR. The authorization request mentioned being unable to taper off prednisone. The other factor was that all other suitable alternatives had failed … notably methotrexate.
How are you doing on 3mg. Even with Actemra, I had to stay on 3mg for 6 months to allow time for my cortisol level to improve. Actemra prevented a flare of PMR. Otherwise I wouldn’t have been able to stay at 3 mg let alone taper off prednisone.
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How am I doing at 3 mg?
I see the rheumatologist tomorrow (Wed). Monday I had my markers, crp was 8.7 ( should be < 5) and sed rate was 5 (should be < 30). My crp is almost always elevated and my sed rate always normal. My markers in June were higher crp 14.7, sed rate 14. I was alternating 2.5 and 2 mg and not feeling all that great. I messaged the Dr about feeling overly achy and fatigued. He said to just stay at 3 mg until my appointment. I am feeling better at 3 mg, This hot humid weather doesn't help. I'm a little stiff in the mornings. I don't think that's ever going to go away.