← Return to Radiation or not after surgery for endometrial cancer?

Discussion
Comment receiving replies
Profile picture for RefluxGoAway @njp515

As you can probably see from my previous posts, I declined my oncology surgeon's recommendation after hysterectomy of chemo-radiation (25 weeks I think). I was Grade 1 Stage 2 (invasion into cervix of under 10%). I did do an experimental Brachy therapy of two high dose treatments at MD Anderson. I did not reject the original recommendation lightly. I had two second opinions from geographically diverse centers, and I also saw the local radiologist that the surgeon recommended. None agreed with the chemo recommendation, but all but one recommended some form of radiation -- ranging from full external beam to localized internal. One other option was to "wait and see." When I went with the 2 Brachys, I felt that I had done enough to research my options and am okay with this decision no matter the outcome years from now. If you can, try to get other opinions. It's not hard to do it virtually.
I am having constant pain in my right hip radiating down my leg to the outside of my knee. This occurred after the hysterectomy but before the Brachy, and it got worse before it now is starting to get better with PT. Everyone wants to blame the Brachy, but it was definitely trauma to my L4-L5 and S2 from the surgery. If not for this, I would say that the Brachy was the simplest procedure option that was out there. It was not painful for me at all, but you do have to dialate your vaginal area a few times a week to prevent stenosis.

Jump to this post


Replies to "As you can probably see from my previous posts, I declined my oncology surgeon's recommendation after..."

I align with you thinking but have to learn more about brachy, especially if you have to continue to dialate yourself for the rest of your life. I'm hoping to do nothing, but now I'm reading the post below from jeanadair which is very concerning!

Oh wow, reading about the damage to your lower back is concerning because I'm due to have a hysterectomy on Aug 20th. This doctor has very good reviews and is loved by many people as seen on tik tok video replies my daughter has made of my cancer journey. I already have severe back issues for 20 years so I'm praying I come out of this with no injuries to other organs or areas of my body.