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Feedback on Linzess for Irritable Bowel-C or Chronic Constipation
Digestive Health | Last Active: Sep 13 11:55am | Replies (227)Comment receiving replies
I’ve used Linzess on and off for 20 years +.I haven’t had any problems with it, only success! I’ve had IBS C/D for over 20y, and it is the only thing that has helped! Then I had surgery for GERD & hiatal hernia. I’ve been left with all sorts of problems that you wouldn’t believe? I have Gastroparesis (they think?), from the Nissen Fundoplication I had twenty one years ago! It was taken down to a Toupee Fundoplication . It worked for a little while on and off. I had to have my esophagus dilated over eleven times! Each one worked for a few too! Now it’s acting up. I would like it to be totally undone, for my sanity I will try to get a referral to a surgeon and hope they can do it, otherwise I’ll either get a second opinion or as many as it takes! This one procedure has made my life a living nightmare, I think it should be outlawed in all 50 states! This is no quality of life? I hope I can get a second or third opinion up at USD, UCLA or Cedar’s Sinai, and definitely to Mayo!
Replies to "I’ve used Linzess on and off for 20 years +.I haven’t had any problems with it,..."
Have you tried Trulance...just a suggestion.. but nothing worked for me and Trulance does..and Miralax.. and VSL3 probiotics.. I'm so sorry you are going thru all of this..it's so frustrating and disheartening..you've been thru soo much (much more than me.. I will pray for you!!) Never give up!! Your breakthru is around the corner..
Thank you for this post. My BF recently had Nissan fundoplication whilst undergoing hernia surgery. He failed a test so was dismayed to find he had been given a partial...i'll show him your post. His quality of life is also now greatly diminished. He suffers extensive gastroparethesis and terrible nausea which is debilitating. Gd luck !
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Hi, @ladybee50. Welcome to Mayo Clinic Connect. I'm sorry to hear about all the problems you have since the Nissen fundoplication.
If you are interested in talking to others who've specifically chatted about the Toupet fundoplication, you might look at this discussion: https://connect.mayoclinic.org/discussion/input-on-toupet-fundoplication/
What is your next step? Will you be seeking an opinion at one of the institutions you mentioned?