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DiscussionUpdate on conflicting surgery recommendations
Aortic Aneurysms | Last Active: Aug 24 9:16am | Replies (43)Comment receiving replies
Replies to "Since you went to Baylor, is Houston a convenient place for you? Just my own experience,..."
Listen, this is a personal decision, but what I would do is, I would simply find the best thoracic surgeon you can and make a decision. I promise you that the surgery is not a lot of fun but having dissected suddenly I can tell you that is an absolute nightmare and you may not survive. In fact, I’ll be blunt: you’re very likely not to survive if you suddenly dissect. So you have to look at what the odds are, but you also have to look at what your risk tolerance is. I promise you that if I had known then what I know now I would’ve had surgery 1000 times out of 1000. you’re gonna be fine but you just need to stop Doctor shopping and find one you’re comfortable with who is a thoracic surgeon and let them guide you. Part of this journey is letting go and letting your medical team guide you to the right choice. Aneurysms do not self repair And you need to embrace that concept. At some point you’re going to need surgery and the best time to have surgery, if there is one, is well before you dissect when you can make preparations for yourself and your family. Feel free to email me directly if you if you want to talk further. Look at me? Here I am 10 years after surviving an aortic dissection waiting for my daughter to get out of the fitting room at target. I spent the whole day moving my 91 year old father into a new apartment. If I can do it, so can you. Peace.
I appreciate the feedback. I am comfortable with all the surgeons I am speaking with, I just wish they were all recommending surgery