← Return to Newbie here. Scared and overwhelmed by MAC treatment plan

Discussion
Comment receiving replies
Profile picture for terrimn @terrimn

Of course I'll share! I wake up at 5 for sunrise yoga for postural drainage/airway clearance and 1 cup of coffee. Get my run in-which encourages lung clearance, then shower, etc. I take the 500 mg of Zithromax 2 hours after my morning coffee, but at least 1 hour before breakfast. (Max absorption/benefit on empty stomach). Go about my day, and dinner at 5. I prefer to get the Arikayce (w/2 puffs of Proventil beforehand) done before 6:30 pm because it brings up lots of "airway clearance huffing" mucus and I don't want that new "activity" to keep me from a great night's sleep! Ethambutol and rifampin immediately before bed.
Honestly for me, after my diagnosis, I treat this as just another adventure to add to my already fun and full life of daughter, wife, mother, and grandmother to 4 beautiful and busy boys! A positive, upbeat attitude goes a very, very long way in this particular health journey. I'd be happy to answer any specific questions, and know there's a ton of support here for you.

Jump to this post


Replies to "Of course I'll share! I wake up at 5 for sunrise yoga for postural drainage/airway clearance..."

Oh wow! You are amazing and a great role model! Thank you! You aren’t tired all the time? Nausea?

Her daily itinerary is wonderful. I intend to copy it. Her attitude toward this illness is uplifting. I'm seeing my doctor on Monday and will know what to ask him for in terms of medication. I have been given Azithromycin 500 MG daily and Amox-Clav 875-125 MG, Generic for Augmentin, one tablet every 12 hours. I am no better after a year or more of this regimen, still profuse sweating, fever, fatigue, lots of mucus, coughing, and frequent naps. My grandson has cystic fibrosis; my daughter and I both have the SCNN18 Gene. I would give her a big hug!