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Rheumatoid arthritis: How do you cope day to day?

Autoimmune Diseases | Last Active: Nov 10 2:01pm | Replies (74)

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Profile picture for sarastewart @sarastewart

Oh, sorry to hear about your struggles! Autoimmune whether it’s rheumatoid arthritis or undifferentiated, connective, tissue or many others is difficult to pinpoint. I had my right knee swell up, leading to exploratory surgery and a synovectomy, which is classic for rheumatoid arthritis. However, it was 10 years before I had any indication in my blood work for 10 years, my ANA was negative; my RA was negative. Now,they call it serum negative RA. Unfortunately, it sounds like you’re in an exacerbated state right now. I wouldn’t advise gardening or anything like that flares your present circumstances. You need to do passive range of motion, use ice through a cheesecloth 10 minutes on 10 minutes off, swim, and then get yourself some soft hand and maybe arm immobilizers for sleeping at night. Walking is very therapeutic just a little bit of exercise each day twice a day and decrease any stress in your life. My exacerbated state was a while ago and it was rough. My left hand is permanently deformed, but there is hope! Right now, I’m not on any medication. I haven’t been in pain for a number of years. I do use compression, gloves, compression sleeves on my arms and compression on my knees and lower legs whenever I have an exacerbation. I am living my best life and I pray that for you soon too. Kay🌺

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Replies to "Oh, sorry to hear about your struggles! Autoimmune whether it’s rheumatoid arthritis or undifferentiated, connective, tissue..."

Thank You Kay, I am definitely in a full blown flare. Both knees, right wrist, both shoulders. I haven’t gone to Zumba class in months. Go into pool and do some work out but doesn’t take away the pain. You have found a system that works for you, that’s great, I hope I do too. Do Doctors help you or just give pills? Trying to stay away from heavy duty pills but the pain is getting to me. New RA Dr Wednesday, hope he is the one that can give me a diagnosis.