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DiscussionNewbie here. Scared and overwhelmed by MAC treatment plan
MAC & Bronchiectasis | Last Active: Aug 29, 2025 | Replies (78)Comment receiving replies
Replies to "I need these comments more than you know. ❤️ Can you take another minute to discuss..."
Of course I'll share! I wake up at 5 for sunrise yoga for postural drainage/airway clearance and 1 cup of coffee. Get my run in-which encourages lung clearance, then shower, etc. I take the 500 mg of Zithromax 2 hours after my morning coffee, but at least 1 hour before breakfast. (Max absorption/benefit on empty stomach). Go about my day, and dinner at 5. I prefer to get the Arikayce (w/2 puffs of Proventil beforehand) done before 6:30 pm because it brings up lots of "airway clearance huffing" mucus and I don't want that new "activity" to keep me from a great night's sleep! Ethambutol and rifampin immediately before bed.
Honestly for me, after my diagnosis, I treat this as just another adventure to add to my already fun and full life of daughter, wife, mother, and grandmother to 4 beautiful and busy boys! A positive, upbeat attitude goes a very, very long way in this particular health journey. I'd be happy to answer any specific questions, and know there's a ton of support here for you.
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Are you on any pic line meds? Curious because I’m 65 and I’m very active too, but when I had a pic line in my arm I was told not to exert too much. So NOT fun!