Hello @lzbthtyler
It's good to hear from you with updates. I hope your scheduled EEG in September provides helpful new insights.
I also experience catamenial seizures caused by hormonal fluctuations, and it sounds like you may be dealing with something similar. I wanted to share two resources that you might find useful:
Catamenial Epilepsy Explained
https://www.myepilepsyteam.com/resources/catamenial-epilepsy-explained
Epilepsy in Women: Impacts, challenges, and concerns.
https://www.cureepilepsy.org/seizing-life/epilepsy-in-women-challenges-concerns-and-considerations/
My neurologist and gynecologist have worked together to develop a hormonal therapy that has significantly reduced my hormone-related seizures. I'm currently in perimenopause and continue with the hormonal treatment, which remains highly effective.
Have you had the chance to speak with both your neurologist and gynecologist about this? Also, has your EEG been scheduled to coincide with a specific phase of your menstrual cycle?
Chris

Hi -
I can definitely relate to your post. I also thought my seizures were triggered by my hormones until I recently switched from pre-meno to menopausal. YEY! Although, I am sure some of them had to be because they showed up like clockwork.

But I just wanted to say I hope that you had a seizure while in the EMU unit. We, my husband was with, spent a week in June and I did everything - PF Changs, stayed up all night, coffee (a lot) and all the goodies that hit me on a regular. But I did not have one seizure while at the hospital. However, the following week, I have two.

I hope everything worked out for you.