← Return to Carcinoid cancer: Want to meet others

Discussion
Ruth Ann avatar

Carcinoid cancer: Want to meet others

Neuroendocrine Tumors (NETs) | Last Active: Aug 23, 2025 | Replies (169)

Comment receiving replies
Profile picture for gangcarotid1 @gangcarotid1

I apologize for not responding earlier. I was waiting to hear maybe where your tumor is. I had 2 renal cell carcinoma removed from my left kidney last October. They initially thought total nephrectomy of the kidney, but surgeon called weekend before we were to fly out (to Mayo Rochester) & said he believed he had a 95% chance of saving my kidney. And he did! I have 90% of my kidney left, have been in for checks 3 mos after, 6 mos after and then since everything looked so good, they let me go 6 mos. So I'll see them for CT checks again in Oct. I won't lie to you; open kidney surgery took a good 2-3 mos of recuperating to the point I could drive, sneeze, pick up 10#+, etc. But it's worth it to have the 2 malignancies evicted! They did find a nodule in my right lung 3 mos after my surgery, but so far it's remained stable. Prayers for your Aug 8 surgery. It will go well; you'll look back on it as a helluva adventure, and a sense of relief. Sending hugs!

Jump to this post


Replies to "I apologize for not responding earlier. I was waiting to hear maybe where your tumor is...."

Thank you for an insight to your journey.. mine is 2 spots in my intestines. . One is at where the large meets the small intestines, and then another one at 5 mm. Going in on Friday fur a colon resection... scared