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Treatment options that have worked for Small Fiber Neuropathy
Neuropathy | Last Active: Aug 17 5:26pm | Replies (121)Comment receiving replies
Hi, I have joined this forum for my husband (with his consent). We are UK based. My husband has had increasingly painful symptoms since 2019 and after 3-4 years worth of investigations, was diagnosed (after a biopsy) with non-length small fibre neuropathy.
At one point he was on 10 different medicines but nothing has helped with the pain and discomfort which is mainly in his trunk, as well as elsewhere. He has had pain management treatment through general and targeted infusions plus a spinal cord stimulation trial but nothing has worked.
We are looking expand our search for help, hence this message. Can anyone give any more advise/help?
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Hello @lp0211, Welcome to Connect. I'm sorry to hear that your husband has not been able to find something to help with his increasing painful neuropathy symptoms. I only have numbness with mine which is aggravating enough but nothing compared to what your husband is dealing with. He's not alone with having trouble finding something that helps. It's a journey for most of us and thank you for being his advocate and helping him navigate through the maze of treatments.
What has helped me since joining Connect is learning as much as I can about my condition and the different treatments that are available that might offer some relief. There are many discussions in the Neuropathy Support Group. You might find it helpful to scan through the list of discussions to find other relevant symptoms and topics where you can learn what others have shared. Here's a list of the discussions in the Neuropathy Support Group - https://connect.mayoclinic.org/group/neuropathy/.
The Foundation for Peripheral Neuropathy is also a great source for learning more - https://www.foundationforpn.org/. They also have a YouTube channel where they keep all of their previous webinars on neuropathy topics. Here's a search of their YouTube channel listing webinars for managing pain - https://www.youtube.com/@foundationforperipheralneu4122/search?query=managing%20pain. Here is a list of Pain Management & Treatments for PN - https://www.foundationforpn.org/treatments/.
What is his most difficult symptom to manage?