Treatment options that have worked for Small Fiber Neuropathy

Hi Ed, I have seen a few posts in the groups Facebook page by doing a search of the group but like Connect it seems like everyone is a little different. From the FAQs on their website;
"Will this help any type of peripheral neuropathy?
Yes. Peripheral nerves respond exceptionally to this nutritional supplement formula that supports accelerated healing. Short fiber & long fiber axonal damage are encouraged to heal faster."
--- https://theprotocolworks.com/faq/

I wished the Facebook groups were a little more friendly for new members questions but I understand why they expect everyone to search the group posts before asking a question. You can join the FB group using the link on the website and search through posts. I did find a response to a member from the person who started the group mentioning his diagnosis of peripheral poly neuropathy involving the long and short fiber nerves.

There is proven correlation of statin use and neuropathy according to studies by NIH. I tried taking a break for 3 months from simvistatin but my lipid levels increased so went on small dose of rosuvastatin, no changes in neuropathy symptoms. It is the lesser or greater of 2 evils if you should take the statins. I am currently using red light therapy, exercise and CBD topical. I use CBD drops and melatonin for sleep.

My cardiologist switched my stating to Zetia which works differently. My LDL lipid went down. Though it hasn't helped my PN yet, we do believe it may keep the PN from getting worse.

Advanced Nerve & Laser Center
They were in Corinth, Tx but have since moved to Dallas and Houston. I was promised 50% improvement but I feel it was more like a 65% improvement. It was very expensive then $$$$$ and that was some time ago.
Like all man made things that treatment does not last forever.
THERE IS NO PERMANENT CURE FOR WHAT WE HAVE…NEUROPATHY!

Advanced Nerve & Laser Center
They were in Corinth, Tx but have since moved to Dallas and Houston. I was promised 50% improvement but I feel it was more like a 65% improvement. It was very expensive then $$$$$ and that was some time ago.
Like all man made things that treatment does not last forever.
THERE IS NO PERMANENT CURE FOR WHAT WE HAVE…NEUROPATHY!

Hi, I have joined this forum for my husband (with his consent). We are UK based. My husband has had increasingly painful symptoms since 2019 and after 3-4 years worth of investigations, was diagnosed (after a biopsy) with non-length small fibre neuropathy.
At one point he was on 10 different medicines but nothing has helped with the pain and discomfort which is mainly in his trunk, as well as elsewhere. He has had pain management treatment through general and targeted infusions plus a spinal cord stimulation trial but nothing has worked.
We are looking expand our search for help, hence this message. Can anyone give any more advise/help?

Hello @lp0211, Welcome to Connect. I'm sorry to hear that your husband has not been able to find something to help with his increasing painful neuropathy symptoms. I only have numbness with mine which is aggravating enough but nothing compared to what your husband is dealing with. He's not alone with having trouble finding something that helps. It's a journey for most of us and thank you for being his advocate and helping him navigate through the maze of treatments.

What has helped me since joining Connect is learning as much as I can about my condition and the different treatments that are available that might offer some relief. There are many discussions in the Neuropathy Support Group. You might find it helpful to scan through the list of discussions to find other relevant symptoms and topics where you can learn what others have shared. Here's a list of the discussions in the Neuropathy Support Group - https://connect.mayoclinic.org/group/neuropathy/.

The Foundation for Peripheral Neuropathy is also a great source for learning more - https://www.foundationforpn.org/. They also have a YouTube channel where they keep all of their previous webinars on neuropathy topics. Here's a search of their YouTube channel listing webinars for managing pain - https://www.youtube.com/@foundationforperipheralneu4122/search?query=managing%20pain. Here is a list of Pain Management & Treatments for PN - https://www.foundationforpn.org/treatments/.

What is his most difficult symptom to manage?