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Scared: liver has a coarsened echotexture
Liver Diseases | Last Active: Aug 31 2:01am | Replies (9)Comment receiving replies
You’re not alone. It is a scary thing.
I’m in limbo also, after a long list of bloodwork and a liver biopsy, all the nurse practioner says is that I need another test, for which the wait time is months. Being in a position of trying to develop diagnostic likelihoods on your own…well, it isn’t fun. I would have expected more from the department at Mayo.
Replies to "You’re not alone. It is a scary thing. I’m in limbo also, after a long list..."
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@trissa - Welcome to Connect where you will be able to learn from and share with other patients who have experience with liver disease.
As you begin your liver health journey, I want to share something that I was told early on my diagnosis/treatment - Everyone can experience different symptoms, even if patients have the same diagnosed liver disease. So, your healthcare team is going to always be your most accurate source of information about 'you' as you continue forward. (Even today, 16 years post transplant, my PCP adheres to whatever my transplant team recommends) And, patience is going to be a necessity, although not easy!
I remember when I was referred to specialist, that I had the same fear and desire for a diagnosis as you are experiencing. I wanted to read all that I could read about the possibilities. My favorite 'Go To' for reliable information, even before I was a patient there, is Mayo Clinic. Here is the link to Liver Disease where you can learn about Symptoms, Causes, Diagnosis, and Treatment:
- Liver Disease
https://www.mayoclinic.org/diseases-conditions/liver-problems/symptoms-causes/syc-20374502
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@trissa - During your pre appointment time, I would encourage you to begin to make a list of questions that you want to ask at your appointment. Are you currently experiencing any symptoms?