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Carcinoid cancer: Want to meet others

Neuroendocrine Tumors (NETs) | Last Active: Aug 23 1:27pm | Replies (169)

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Hello @dchance1,

I see that your procedure to remove the NET will be on Aug. 8, just a few days from now. You asked if anyone had a NETs removed, and it never came back. I've had three NETs removed from the duodenal bulb. It didn't appear to be metastasized as all three surgeries were in the same location. The third surgery was done at a university medical center. It was an outpatient procedure, and they used a heat procedure. As NETs tend to be very small cells, it was felt that in the previous open (invasive) surgeries that there might have been some small cells that weren't removed.

My surgeries were several years apart, 2003, 2005 and then again in 2016. Everyone's experience with NETs is quite different so it is difficult to make assumptions based on another person's experience.

Will you post again after August 8 (and of course before then if you have any questions)?

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Replies to "Hello @dchance1, I see that your procedure to remove the NET will be on Aug. 8,..."

I will post as soon as I can.......... thank you for letting me know of your experience. It helps to know that I have a chance. One heards the C word... and well my mind went to the worst possible place...