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I'm angry about peripheral neuropathy, let's take action.
Neuropathy | Last Active: Aug 8 10:29am | Replies (12)Comment receiving replies
Thanks for detailing how clinical trials work. I guess I am just reflecting my fears about medicines these days as I still think that the methylprednisolone that I took for a sinus infection may have acted as a trigger to my getting PN. Now I am reluctant to take nearly anything and am very into holistic approaches. While I am still disturbed about the muscle wasting that I experienced, I am kind of lucky in that my PN is not painful--my neurologist said I had a mild case. Pain is difficult to deal with and while there is talk of managing it--that is easier said than done. And, of course, I look back to the days--only yesteryear, when I did not have to deal with any of this. Seems like it was a cascade of bad happenings.
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I have to comment on this fear of medications. I like evidence based decisions. If, for example, methylprednisone did trigger your PN, that means you were destined to “get” PN anyway. Millions of people take steroids and do not “get” PN. So there is no correlation between that drug and your PN. For some reason you developed PN around the time you took the steroids. It’s just a coincidence. So choosing to forego all pharmaceuticals because of this coincidence is just that - a choice you have made. It is not evidence based in any way.
I have relatives who suffer needlessly because of a belief that medications are somehow bad, or that taking them is a sign of weakness. In fact, many people with many illnesses are able to lead BETTER (not great, but BETTER) lives because researchers have dedicated their lives to constantly searching and seeking to ease suffering. The scientists in the lab do not benefit financially from this. They are just doing their job every day, with passion. They could have chosen any other field, but they chose to work with the miracle of pharmaceuticals. I am SO VERY grateful to them for helping me get through every day with less pain.
There are no awards given in this life for choosing to suffer. It is each person’s choice. But I can’t live my best life, AND help other people ( which is something I try to do every day) if I am incapacitated by pain and depression.
Thank God for medications.