Replies to Here in the U.S., the dose you were on is pretty routinely prescribed without regard for…

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Autoimmune Diseases | Last Active: Aug 6 10:16am | Replies (10)

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@missy245

Here in the U.S., the dose you were on is pretty routinely prescribed without regard for what the patient weighs.
I was put on that dose in 2000 and I am a very small person, weighing 112 or slightly less. Two different rheumatologists prescribed that dose.
I was on it for 12 years at which time my visual field exam detected retinal toxicity and so then I discontinued it.
I then tried Methotrexate but was allergic to it. As I remember, my dose was 10mg weekly. The suggested starting dose for MTX is 10mg-25Mg. weekly.

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Replies to "Here in the U.S., the dose you were on is pretty routinely prescribed without regard for..."

cptrayes | @cptrayes | Aug 3 1:27pm

And yet even the US guidance notes I can find say that 5mg/kg bodyweight is the absolute maximum HCQ that is "safe" for eyes.

Honestly, on both sides of the pond medics are taking known risks with people's sight.

I hope your sight stays stable now you're off it. I will use a wheelchair before I would take another milligram of the stuff.
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