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Newbie here. Scared and overwhelmed by MAC treatment plan
MAC & Bronchiectasis | Last Active: Aug 29, 2025 | Replies (78)Comment receiving replies
Thank you for sharing your experience. These hopeful comments mean the world to me. With everything I am reading and hearing from others the thought of no side effects never even crossed my mind! The staying positive is so important and I understand how powerful that can be. But honestly, I am struggling with this.
Replies to "Thank you for sharing your experience. These hopeful comments mean the world to me. With everything..."
@tte's advice was exactly what I would want to say to you. Yes, we are all different but there are those of us who have had mild to no side effects.
At 76, I was given the 3X P/W option for the Big 3.
I chose to take the meds in the evening before bed and no side effects. I had some fatigue during the day was all I can remember. Had my ears and eyes tested on a regular basis.
My problem with Arikayce was voice changes that got worse over time, and I wound up stopping the Arikayce earlier than the typical protocol. Good Luck
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Just know you’re not alone! And ask questions of your doctors and push them to answer you. Be your best advocate! Don’t stop doing what you want in life. Keep going! You got this!