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Profile picture for Sue, Volunteer Mentor @sueinmn

@ladonnahc Hello, and thanks for taking a hand in your Mom's care. It can be overwhelming!
A list of specialty Bronchiectasis Care Centers has recently been created by a group of specialists.
https://connect.mayoclinic.org/discussion/bronchiectasis-and-ntm-care-center-network-ccn/
If you have access, there is a center at Vanderbilt University in Nashville.

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Replies to "@ladonnahc Hello, and thanks for taking a hand in your Mom's care. It can be overwhelming!..."

Thank you for replying. The pulmonary group she goes to now says on their website that they care for bronchiectasis but the care is mediocre. I feel like she bounces between ID Dr and pulmo and neither seem to now what to do. I’ve learned more from reading in this group. I guess my question is would this list of care centers be the same or is there way to find a higher specialty than where she goes now? Would love someone to take over her care with most up to date knowledge.. I know we have to be our own advocate but it’s exhausting.