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Are there suggestions for living with pure autonmic failure (PAF)?
Brain & Nervous System | Last Active: Sep 11 9:55pm | Replies (34)Comment receiving replies
I am glad that the bicycle helps. I have tried a stationary recumbent bike and it was ok for me. I don’t recall feeling bad, I do remember getting up could be challenging with BP crashing. My BP crashes on a regular stationary bike.
I don’t have any activity that I sweat in any big way. I will get a bit damp on my back driving on a warm day, but that’s about it.
The one thing that I do, and have done since I was in school, is to stand with my legs crossed at my thighs. If I try to stand normal with feet apart, my BP will drop or crash.
Replies to "I am glad that the bicycle helps. I have tried a stationary recumbent bike and it..."
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It seems like everyone has some different symptoms or degrees of issues with PAF. I think mine is on the lighter side of symptoms as I don't pass out and I recover from the dysautonomia pretty quickly upon standing up. One trick I use is squatting down as I feel dizzy upon standing and pumping up and down. It seems to push blood up to my head a bit quicker.
I am going to a trainer who works on core strength and balance. I am 68 and am concerned about falling as I get older. You may look for a trainer who is trained in working with people with these types of issues.