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Are there suggestions for living with pure autonmic failure (PAF)?
Brain & Nervous System | Last Active: Sep 11 9:55pm | Replies (34)Comment receiving replies
Yes, I did have the sweat test with the powder. It was surreal.
I am fairly certain I have been dealing with this to a degree most of my life.
I really started noticing an increase of symptoms when I was 46 (I am now 61). But it wasn’t until I was 48 that I passed out for the first time. It still took a year to get to Stanford Neurology.
The amount of medicine I take has increased over the years. I do get concerned about how much I take and at what point do I max out.
I hope you find relief soon.
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@marcwp, I hope things might improve for you, after over a year of weird symptoms, I don’t think anything is going to get better for me. Sounds like you might be in the same situation as me as you had something brewing for awhile, but it didn’t really make itself known in a big way for a lot of years. Sending good wishes.