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Cancer but not treating it

Liver Cancer | Last Active: Oct 5 11:46am | Replies (24)

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Profile picture for Miriam, Volunteer Mentor @mir123

I'm glad you are getting comments. I can empathize. I've had chronic pain and organ damage from a severe illness when I was 21. I'm now 71! I was able to live a good life, work, and have a family. But the pain management takes a huge amount of energy. I have numerous co-morbities. In my sixties I began to realize that I wouldn't treat the "next" illness aggressively. I have a rare breast cancer that was treated in a moderate fashion--lumpectomy, short course of radiation, and aromatase inhibitors. Rather to my surprise, I feel good and am fine three years later. But I've made it clear to doctors and family I won't treat a recurrence with chemotherapy. However, your pain level is concerning. I have a palliative care doctor I consult with. And my pain management has improved since the breast cancer. Oncology, and in my case nephrology, can be more willing to treat pain effectively than a PCP. Do you feel more can be done for the arthritis? Palliative can be supportive, so I suggest it if you need it. Wishing you all the best.

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Replies to "I'm glad you are getting comments. I can empathize. I've had chronic pain and organ damage..."

The problem is I can't fix everything. Meaning, I never had surgery and can't say I fixed anything what I did I was able to live a normal life. Fast forward to many years later it is still painful but not as bad. If I fix a knee there's always the back. If I fix the back and knee then there's the neck. Due to the location of the back and neck I don't trust any doctor. I've consulted with many doctors and the risks are too dangerous. If you replace a knee the risks are surgical related (example blood clot, etc). You can never predict BUT with the neck and back if they make a mistake cutting or something during the actual procedure the result is possible paralysis. Living alone I can't take that chance so I live in pain but I learned to take steps in dealing with it. Yes, at times it is much worse (weather or lifting garbage, etc) but I am dealing with it.

As I mentioned with the multiple issues now I have cancer on top of all that. At 59 it's enough. I don't want to cripple my life any further.