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Rheumatoid arthritis: How do you cope day to day?

Autoimmune Diseases | Last Active: Apr 18 6:41am | Replies (92)

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Profile picture for cptrayes @cptrayes

In the UK a clearly out of range anti-CCP blood test result is an automatic referral with rheumatoid arthritis diagnosis and would get you put straight onto hydroxychloroquine and methotrexate.

I'm waiting for methotrexate, 2 months before the pharmacy will talk to me but meanwhile I'm having some really decent reactions to MSM and licorice, both antiinflammatory. (You can't take licorice with steroids).
I'm adding turmeric and Cats Claw this week (both anti-inflammatory but CC is also anti TNF, which is part of what methotrexate does).

I'm going to retest my own bloods in September and if my markers are down I'm going to refuse the MTX, it's as nasty a drug as HCQ, just in different ways!

I'll go on it if my bloods show that I need to, though, I have vasculitis that's having a nibble at my kidneys and blood vessels and that needs keeping at bay.

Good luck Wednesday

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Replies to "In the UK a clearly out of range anti-CCP blood test result is an automatic referral..."

Thank you, I am becoming a different person without a definite diagnosis, I hate it. My ccp was 230, I guess I wasn’t in enough pain, am now. Trying to stay positive.

While you are self testing run a Sjogren's panel. I am not a dr. but had several autoimmune diseases and a few of your symptoms sound suspiciously like Sjogren's. Good luck.