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shorthairptr66 avatar

Cancer but not treating it

Liver Cancer | Last Active: 1 day ago | Replies (26)

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Profile picture for Ginger, Volunteer Mentor @gingerw

@shorthairptr66
I deal with multiple myeloma and end- stage kidney disease. I am on treatment for the MM, and daily dialysis for the kidney issue.

At the start of dialysis, 3 years ago, I made the decision to not move to any other modality of treatment. If this current treatment cannot continue for some reason, dialysis will be stopped. Like you, there is peace and empowerment in this decision.

Being single, have you made your wishes known, and end of life plans? Perhaps a visit with a palliative care nurse, or the social worker at your cancer clinic, to firm up any holes in your plans?

How is your circle of friends and family supporting you? Have you had to unfortunately shut some of them down if they will not cease to try and change your mind? That has been happening in my situation.

This is a powerful topic, and your are brave to take this on, here.
Ginger

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Replies to "@shorthairptr66 I deal with multiple myeloma and end- stage kidney disease. I am on treatment for..."

Ginger--I am touched and inspired to hear how you are doing. I'm interested in the idea of a "quit point" when making decisions...I'll go so far but no further...and it is a powerful decision making tool that has helped me. Thank you!

I updated my will and spoke with my brother in detail what to do.

Obviously nobody agrees with my decision but they understand it.

I talk to whoever wants to talk to me. I haven't shut anyone out of my life. I'm the beginning I distance myself from a lot of people because I felt like a broken record repeating the same thing over and over. People understood and backed off and told me when I'm ready they were there. That's exactly what I needed. That's why on Facebook I posted it once instead of repeating myself. Once it got out of my head I felt better.

Everyone will tell you the same thing (and this goes about everything) never ever go down the Google rabbit hole. It's dangerous and will only make you feel worse. That's what I did and I'm guessing everyone else.

You know what I mean 🤣

Thanks