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Arachnoiditis: How do you manage the nerve pain?

Posted by maxi49 @maxi49, Jun 21 1:58pm

Had a second mri confirming arachnoiditis. Had major back surgery a few years ago . Disc replacement, fusion.May be the cause. Treatment options are few. Don’t want to take opioids . Still active but have significant nerve pain at times. Anyone have similar issues?

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laura1970 | @laura1970 | Jul 18 6:58am
In reply to @elilavonhansen "I recently underwent two cervical disc replacements and one lumbar disc replacement and the issue I..." + (show)
Profile picture for elilavonhansen @elilavonhansen

I recently underwent two cervical disc replacements and one lumbar disc replacement and the issue I was having in my leg, went from one in every 15 or 20 days to 24 hours a day and super severe. In diagnosing a Dura leak from the surgery and the consequential MRIs and CT’s they mentioned arachnoiditis, and we have looked into it in my lower back and I have pretty severe arachnids in my lower back. I am very new to this and prior to the surgery was a fairly healthy 45-year-old married guy. The results of their disc replacement surgery are good other than it seemed to have set off arachnoiditis in my leg and made things 10 times worse with the leg. All I can seem to find is pain management solutions and lifestyle coaching. Has anyone had any luck with Neuro hormones or any treatments that didn’t simply involve more pain medication. I realize I’m at the beginning of this road the many of you’ve been on for a lifetime. Let me know if there’s any physicians or facilities specialize in this or treatments that are available. I’m currently I have trouble walking if it’s over a significant distance and sometimes can’t hardly move the leg at all.

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Google dr forest tenant. He’s passed away now but has tons of info. Also he has may videos on YouTube

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laura1970 | @laura1970 | Jul 18 7:15am

I have found this website helpful. Dr forest tenant has also written books available on Amazon and has videos on YouTube
https://arachnoiditishope.com/

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laura1970 | @laura1970 | Aug 3 1:49am

There is a new drug, Ziconotide, but must be administered via intrathecal catheter. I’m not putt anything back into my spine, that’s what caused all the problems in the first place.

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