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Bob, I am not in your league by a longshot, but I was diagnosed with PCa 6 yrs ago. Had RARP and during the procedure bladder cancer was found. Low grade but kept coming back.
Finally had 8 rounds BCG and so far so good. But PCa came back last year and I had 6 months of Orgovyx and 25 rounds of IGRT. And now just waiting for the next shoe to drop, right?
But again, nothing like what you - and many others on this forum - have been through. This forum has been so valuable to me because I’ve come in contact with some great people - people who’ve really suffered, had the crap knocked out of them.
But they’re still in the fight, not complaining and doing what has to be done. This support group really helps me tune out all the BS in the news, the talking heads pontificating on why this guy belongs in jail or that one should be pardoned, and all the endless blather on social media…
Enough already!!!
Life gets REAL in a hurry when you get cancer. You suddenly realize that everything else is just noise - the way you lived was noise…but now it’s very quiet and it’s just you - and IT. (Or in your case, Bob, THEM! ).
So I really can’t complain and I consider myself lucky to be here in the company of all these fine people. Best,
Phil
Replies to "Bob, I am not in your league by a longshot, but I was diagnosed with PCa..."
I finally became aware of the concept of life getting REAL -- a very authentically, quite verifiable truth -- only recently. I am grateful, all the same. It has been both liberating and bit scary. I truly appreciate your remark, here, Phil, and I look forward to being a contributing part of this extraordinary group of people.
Gratitude comes to mind.
Steve
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I agree with you Phil, when we lay our heads on the pillow at night it’s just us and the cancer- wake up pretty much the same way, alone with cancer. But I don’t pay that noise no mind cause it’s just “colored bubbles” and meaningless. You’re in all our leagues and I can only speak for myself but, I need you and your knowledge and understanding cause I have an oncologist just itching to take away my pain meds instead of shining a light on me and saying, “look what I’ve done” and that’s been the toughest pill to swallow I’ve ever experienced or expected just because I question his methodology and refuse some of his tests. Also at stage 3b kidney failure he keeps wanting to run tests he already knows the answer to and order them with contrast ( a real no-no for me and the condition of my kidneys and advanced age) at soon to be 71. He hides behind his PA’s to deliver negative replies to my suggestions concerning my treatment as if I have no right to participate in my own treatment plan cause I’m too stupid to understand his techniques. Now this is the point where most people back down, but not me- nice try wrong guy! I have an appointment at Cleveland Clinic August 11th and it’s on like donkey Kong. Gonna hit his ass with a second opinion which will really frost his cookies! Really do believe he’s trying to kill me before 1 of these diseases does or let me linger in inexplicable pain. We’ll see cause I don’t back down as I’d rather go down swinging than roll over and die because his textbooks say so. Stay with us all- all good people just like you! Peace out, Bob