As a fellow 6'4" + size person who loves sports/exercise, I was in your shoes a while back when I joined here. It shook my identity of who I am if I can't play basketball or lift a piano or squat etc....So I feel you for sure.
Good news is 6'4" puts you in an low risk category with a 4.3 size (https://www.jtcvs.org/article/S0022-5223(17)32769-1/fulltext) and this chart attached is helpful I found helpful from https://www.sciencedirect.com/science/article/pii/S0022522317327691#undfig1.
If it is quick growing and/or between 5 and 5.5 seem to be where the risk grows. We are both 6'4" and that is actually a benefit here for dissection risk and size.
I will state if they did not do a contrast CT, would advise it. Mine had the wrong size measured (smaller) with the non-contrast CT and echo (echo was closer though). It was actually in 5 cm range once measured with a contrast CT. Echos not considered a gold standard for measurement of this type of issue but is for Valve stuff. Also do genetic testing if you haven't got that scheduled already.
When it was believed to be smaller, it was recommend constant exercise without extremes. So biking was a check, sprints, mountain biking or hill runs through high grades was avoid if heart rate spikes or if I can't sing or talk. If I wante to do mountain or hills, use an ebike to keep the heart rate in a safe range. Lifting reasonable weight (lower amounts, more reps, don't hold your breath) check but not heavy lifting to increase blood pressure. Swimming constantly okay just no sprints. Yoga and Taichi and other slow flow stuff good but HIIT/Crossfit types of exercises are off the table. No combat sports or anything where someone could hit me in the chest like basketball. Etc, etc...You get the theme.
Consistent, measured exercise = safer/lower risk of a dissection
Fast heart rate or blood pressure spiking exercise or impact = higher risk dissection
For you, got to decide risk vs reward. Its a balance. Like you, I find a lot of community in sports and in intense exercise. Also I have read/heard athletes (https://www.acc.org/Latest-in-Cardiology/Articles/2024/09/09/10/21/CV-Sports-Chat-Dilated-Aortas-in-Athletes) and tall people just have a higher risk for these things for it appears no known reason if no family or genetic history has this. That sucks and I fall into this but it is a thing.
When I thought it was smaller and had to live with this for a long time before surgery, started a journey. First I had just slowed it down for a bit and shift my mentality while learning. Morned my loss of intense exercise and how it felt. Started to view it as a challenge a new way. Replace intensity with distance for example biking and swimming. Tried to keep my heart range steady in other exercises. I reached out to a science base trainer who actually had an anatomy background to discuss good ways to shift my lifting, training, and activity. One of the lifting changes discussed was lower weights, more reps and work on flexibility and moving up in weight slowly if at all. Also simply singing or talking during exercise to gauge exertion since I usually focus on the push. I did have to back off that one and stop lifting weights since my non-contrast CT and echo disagreed a lot in the size with each other during diagnose period and then due to my contrast CT basically moving me to a higher risk category. Before that though, found that it was possible to live a active, exercise focused life just with modifications and a different mentality.
You got this. You overcome challenges like you do in sport constantly. Hopefully my journey helps you feel a little better as you begin yours. Its a start of something new!
What an incredible reply. Thank you so much. I read your reply out loud to family and must have read it 5 times over myself. Thank you so much for the time and effort you’ve put into this. You’ve had a positive impact on my life.
I had my Echo in early July and have my CTA in late August. The CTA was mostly ordered to ensure my heart is ready for an ablation (4x with Afib over 20 years), but now since the worry and fear over the Aorta, I’ll be be very interested in the results for that reason also.
I spoke with my Cardio about genetic testing and she noted she’d only want to pursue that if I reached 5.0. I may speak with my PCP on the matter also.
Ironically 2.5 years ago my Cardio noted that my Aorta was 4.1 but showed no concern. It meant nothing to me since she showed no concern so I just carried on with being a gym bro, heavy squats and deadlifts, 6 days a week lifting heavy, creatine etc. a few weeks ago when she mentioned 4.3, I now had the MyChart app to log into and interpret the results online. That’s where the scare came from and I’ve been in my head ever since.
I haven’t touched a weight in a month, my dogs have earned the benefits as they’ve never had so many long walks. I’d love to get into some light weightlifting again just to feel “normal” and like you am in a state of mourning for the life I lived for decades. I’m not sure what the next step is.
But thank you, seriously, so much. This can be a very lonely feeling and knowing I’m not alone and someone so similar to me is working through this has helped a lot.