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mch (Marycarol) avatar

Life Expectancy with cavitary MAC

MAC & Bronchiectasis | Last Active: Aug 4 7:25pm | Replies (68)

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Hi Rick, I was diagnosed 3 years ago with BE and my first infection was ecoli in 2022. It took 12 months to clear that out. And after my last dose and two weeks later, I had pseudomonas and has been with me for the past two years. On many occasions, it also came with aspergillus and candida or some other fungi/yeast. I took Cresemba for the fungal infection when detected; taking it for one month then not again for several months until I get another fungal infection.

Unfortunately Pseudomonas is quite stubborn, I have done IV antibiotics at 6X during the last two years. I feel great when I am on antibiotics but two weeks after, I get it again.

Just wondering if there is ever a time when there is a a month or more where folks are infection free.

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Replies to "Hi Rick, I was diagnosed 3 years ago with BE and my first infection was ecoli..."

I had a six month window about 3.5 years ago where I has no AB's and felt ok. This story never seems to end

Do you feel there are any lingering benefits from the IV antibiotics after those two weeks? Or do you go back to your usual symptoms? Or do you ever get a worsening of symptoms after the two weeks? How long did they keep you on the IV each time. Which antibiotics were used in those 6 times?