Does anyone have gluteal tendinopathy? Any successful treatments?

How is Non-Radial Axial Spondyloarthropathy diagnosed?

That sounds like me - if I sit for a while, I have great difficulty getting up, but it does get better once I’m up which is pretty consistent with spondyloarthopathy. Also like me - if I overdo it, I pay for it with more pain and worsening stiffness. My rheumatologist told me if you have one autoimmune disease, you often acquire another as time goes on, so it wouldn’t be unusual to start out with Hashimoto's and then find yourself a few years later with something else too. Fibromyalgia has a specific set of criteria but unfortunately no blood work. IMHO it’s somewhat a catchall diagnosis of exclusion when you have widespread pain, fatigue and brain fog and they can’t find anything else wrong with you.

So there is a genetic marker they can look for - HLA-B27 - but lots of people have the marker who don’t go on to develop the condition, and there are people (like me!) who have the diagnosis but are negative for the marker.
In my case, I started out with a diagnosis of RA of the hips and spine as my back and hips hurt constantly, I had elevated inflammatory markers, persistent low grade fevers, and I had terrible morning stiffness, but I then developed uveitis and inflammation where my tendons attach to the bones in my shoulders so my diagnosis changed.

This might be helpful:
https://spondylitis.org/about-spondylitis/overview-of-spondyloarthritis/non-radiographic-axial-spondyloarthritis-nr-axspa/diagnosis/

I don't have arthritis in all areas but mild in hips. It is more tendon issues throughout the body. I want to do genetic testing but don't think my doctor will okay it. I know you can do it on your own, but I am sure it is expensive. Still, I think it would be helpful. I also read the link supplied on this forum about PRP. That isn't covered under insurance but seems promising.

My comment is directed to anyone living with chronic pain. I recently read a report in the Journal of the American Medical Association often referred to as JAMA. referencing the treatment of Chronic Pain. In this Journal it is reported that the use of a compounded drug called NALTREXONE used in low dose amount can relieve chronic pain in people! This a new discovery folks!! Also when used at a low dose (4,5 mg) there are relatively no side effects! It is also non-addictive! After reading the article I called and made a appointment with a pain specialist. He advised me that this drug has previously been used to treat patients who were coming off of drugs and it was only recently found that it relieves chronic pain. He said it's the best finding since he has been practicing medicine! My orthopedic doctor was totally unaware of the JAMA report and had never heard of NALTREXONE being used to treat pain. I encourage everyone in pain to bring this information to the attention of your treating physician. NALTREXONE is a compounded drug so it is not available at your local drug store. It is made by Compounding (Apothecary) Pharmacy. I hope this new information is helpful in your journey to relieve chronic pain. It sure has been a game changer for me.

Boy do I know how you feel! I've had glute pain for over 3 years! Now I am taking a new drug called NALTREXONE and the pain is soooo much better! I have posted a comment on this medication. Please read.

Yes, thank you

Thank you! I have an appointment with my pain specialist in two days and will talk to her about this drug.

I've been on LDN/low dose Naltrexone for 2 years. It saved my life. I'm not 100% pain free and never will be but it has reduced my unrelenting pain level of 8 to a 6 and that is huge. After being treated for chronic lumbar and sacroiliac joint pain for over ten years now, I've been diagnosed with gluteal tendinopathy too. I have found that very few MDs know about the latest LDN protocol, or they've never even heard of this use of Naltrexone. I have had no side effects from 4mg Naltrexone. I urge anyone reading this who is experiencing chronic high level (or low level) pain to talk to you doctor about LDN. Good luck to all of you.

THANK YOU! I talked to my pain specialist about this and she said she had heard of it but their practice did not have anyone being treated with it. She said she will investigate and get back to me. In the mean time she wants to do another epidural if I agree. I've had 2 before with no results. I think I will decline the epidural.