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Please tell me everything re Orgovix - is this the latest and greatest
Prostate Cancer | Last Active: Aug 6 1:16pm | Replies (24)Comment receiving replies
My husband had a hormone injection about 10 weeks ago. As well, he takes abiraterone on a daily basis. The medical oncologist has him booked for another hormone injection (elgard, I think) in a couple of months. She has indicated that my husband will probably be hormone therapy for the rest of his life. I hate that idea. His libido is negligent, and the reason I worry about that is the prospect of atrophy. IF there is any chance that the testosterone comes back, atrophy could prevent sexual activity. And, of course, there are so many other side effects, muscle and bone loss, etc. I am hoping to hear that hormone therapy is not a lifetime prospect. My husband has metastasis in about 5 lymph nodes. ALSO, I asked the oncologist if we will get another PSMA in order to see what the result of radiation and hormone therapy has been. He said no PSMA until my husband has had hormone therapy for 2 years. I don't understand that. They didn't even provide the original PSMA for us; we found a private company and paid $3,200 for it. I am willing to pay again, in order to determine the results of the present treatment. Does anyone have comments or ideas on that?
Replies to "My husband had a hormone injection about 10 weeks ago. As well, he takes abiraterone on..."
How old is your husband? Can he get surgery?
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Doing PSMA-PET scans too often won't help, unfortunately. If your husband's PSA goes low enough and stays there, then the cancer cells are dormant, whatever shows up on a scan.
It's generally believed that metastatic prostate cancer won't ever go away, though some researchers are debating that for oligometastatic (just a few metastases). The miracle is that they can often keep us alive indefinitely now, while in the recent past our outlook used to be a few years at best. I'm going to meet my first granchild in January, something I didn't think I'd survive long enough to see when I was first diagnosed in 2021 at age 56.
It is possible to have intimate relations on long-term hormone therapy — the desire can come back after a year or two, though your husband will need some assistance (mechanical or pharmaceutical) on the physical side if that includes penetrative sex.